Problems

Terminal Illness
(see also Bereavement Section)

Agencies providing advice, support and information

Anne Robson Trust
Online resources to support you when someone close to you is dying, resources to help after a death and coping with grief.
https://annerobsontrust.org.uk/resources/

Compassion In Dying:
0800 999 2434
www.compassionindying.org.uk
Information and advice on end of life care, medical treatment and decisions and information on your rights.

Dignity In Dying:
020 7479 7730
www.dignityindying.org.uk
Leading campaigning organisation promoting patient choice at the end of life. Advice and guidance on how to retain control at the end of life and information on Living Wills and your rights.

Hospice UK:
www.hospiceuk.org
Telephone and information services on hospice and palliative care services in the UK and overseas.

NewLife - The Charity for Disabled Children
0800 902 0095
https://newlifecharity.co.uk/
A charity on a mission to empower all disabled children and their families to live life to the fullest. They champion the joy of childhood through essential support, equipment and play, so every child gets the chance to thrive.

Their FREE national Nurse Helpline offers emotional and practical support to families and professionals caring for disabled and terminally ill children, including specialist health information and support. Their team of professionally qualified, registered nurses have a wealth of experience and are committed to putting the needs of children and their families first.

Their experienced Nurses are available to give condition specific support and information, while the rest of their Child & Family Support team provide information and updates about their Equipment Services. Call the Newlife Nurse Helpline Reception Team to connect to their Nurses and arrange a Nurse call back, or book an appointment to assist with your enquiry.

Rainbow Trust:
01372 363438
www.rainbowtrust.org.uk
Provides emotional and practical support to families who have a child with a life limiting or terminal illness.

REACT
Rapid Effective Assistance for Children With Potentially Terminal Illness:
020 8940 2575
www.reactcharity.org
Works to improve the quality of life for financially disadvantaged children with life limiting illnesses in the UK. Provide practical assistance with aids and domestic appliances, holidays, funding towards home nursing care or child care, help with funeral expenses.

Rosie Crane Trust:
24hr helpline 01460 55120
www.rosiecranetrust.org
The Rosie Crane Trust provides support to bereaved parents.

Starlight Children’s Foundation:
020 7262 2881
www.starlight.org.uk
Brightens the lives of seriously and terminally ill children by granting their wishes and providing hospital entertainment to help take their minds of the pain, fear and isolation of their illness.

Together For Short Lives:
0808 8088 100
www.togetherforshortlives.org.uk
Care and support for children and young people who are not expected to reach adulthood and their families.

Useful websites

www.hopesupport.org.uk - If you are aged 11+ and a close family member has been diagnosed with a life threatening illness, you can access safe online support in a way that suits you.

www.whenyouwishuponastar.org.uk – grant the wishes of children suffering from a life threatening illness from 2-16 years of age.

Problems

SupportLine is particularly aimed at those who are isolated, at risk, vulnerable and victims of any form of abuse.

Problems

SupportLine is particularly aimed at those who are isolated, at risk, vulnerable and victims of any form of abuse.

Problems

SupportLine is particularly aimed at those who are isolated, at risk, vulnerable and victims of any form of abuse.

Problems

SupportLine is particularly aimed at those who are isolated, at risk, vulnerable and victims of any form of abuse.

Problems

Terminal Illness (see also Bereavement Section)

Agencies providing advice, support and information

Useful websites

Problems:

Terminal Illness
(see also Bereavement Section)